From frequent fits to fairly normal life: Luis's story
Luis was three years old when he started having convulsions. The doctor diagnosed him with epilepsy and said he would never walk or talk. He was destined to spend his life in bed - or so the doctor said.
After undergoing brain surgery, Luis was prescribed medication. But it was expensive and his father only had worked on farms for six months of the year while his mother only earned a pittance selling dough snacks at the weekends.
With money tight, they tried to make Luis’s medicine bottles last longer by reducing his daily dose to 1 centimeter from the 4.5 centimeters he was supposed to take. But that prevented the medication from being effective and Luis, who is now 11 years old, had frequent fits.
Luis recibe su regalo del convivio navideño.
His epilepsy stopped him from going to school until he was nine. And even then his convulsions meant he frequently had to stay at home, often missing an entire week of school. Luis loved learning and often burst into tears when he saw his three sisters head off to class while he had to stay at home.
He fell behind his classmates and ended up having to repeat first grade. Worse still, when he had epileptic fits other children got scared and threw stones at him. He became very clingy and would follow his mother everywhere - even to the bathroom. Luis didn't like playing with others. He was restless, easily distracted and struggled to follow instructions.
There weren't many reasons to be optimistic about the future. But in March his parents heard about Adisa. And since then our donors
have enabled us to subsidize Luis's medication to make it more affordable for his parents.
He now takes the correct dose of two medicines every day and he has not had a single seizure since March. He has hardly missed any days at school this year and his teacher praises him for being so studious.
Thanks to his medicines, Luis has gotten better at focusing, following instructions and communicating. He now enjoys playing with his sisters and he's more independent too - he loves going to buy ice creams by himself.
"Without Adisa his life would have been very sad," said Rebecca, his mother. "It would have been heartbreaking to know that his condition can be treated but that we were too poor to provide that treatment. We're so grateful we can give it to him now."